Ashleigh Gideon

• November 2009 (3)
• October 2009 (1)
• May 2009 (1)
• March 2009 (4)
• February 2009 (1)
• January 2009 (2)
• December 2008 (3)
• November 2008 (2)

Mon, Nov 2, 2009

• Mon, Nov 2, 2009 1:43 PM

  Back in June, Ashleigh's doctor recommended that she see a GI doctor, to see why she is having ashtma attacks. Dr. Rogers thought that maybe her attacks were coming from acid reflux staying too long in her esophagus. Apparently, this is common in CF patients.
  Ashleigh started having these attacks a few days after her last Bronch and Picc line. My first thought was that she may be starting to have an allergic reaction to the antibiotics going in through her line or the Bronch caused some irritation. But she had these antibiotics before and also has had many Bronchs, why reacting now?
  So the GI doctor scheduled to have a 24 hour PH Probe done on Oct 15. A PH Probe is a thin plastic tube with a sensor on the tip that is placed through the nose and goes down into your esophagus to measure how acidic the area is. It is connected to a portable machine that records any events (coughing, eating, laying down, etc) that may trigger acid. It also measures how long the acid was in the esophagus.
  We got the results back last week and the doctor said that Ashleigh's asthma attacks are NOT from acid reflux. Although she had over 150 episodes of acid reflux in her esophagus, they each lasted less than 5 minutes, which is very good for a CF patient. He said usually in a person with CF, the acid will stay in the esophagus for over 30 minutes, therefore causing an asthma attack. Good to hear!! He also proceeded to tell me that Ashleigh is the healthiest CF patient he has ever saw. (and he works with adults and children!)I was so happy to hear that. I guess that means that we are doing something right with all these meds!
  So, what is causing the attacks? I'm still going to go with my first instinct and say it was the Bronch and/or antibiotics. She hasn't had a severe attack since a week or so after she got her Picc line out.
  Ash's next clinic appt is Nov 11...I hope to find out before her next "tune up". So we can determine if we need to change her antibiotics.
  I hope you all had a Happy Halloween and are enjoying the Fall weather. Love you all!

  Comments:

  Wilson:  Wonderful!

  nina:  i had instant tears as soon as i read that the doc said she's the healthiest cf patient he's seen! that's a really encouraging thing to hear, and you do an excellent job sister! love, misses, and kisses!

  Amy:  Well maybe she will be the break through that CF needs to have. She seems strong and has a great nurse to coach her! Way to go girls!!!

  Pop pop:  Mother knows best. Good to hear she is so healthy.

  Aunt Kelly:  <3333 keep these great updates coming!!! love you ashleigh! and make sure to send all my love to your sisters and you mommy sweetie! <333
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